Saudi study on the reluctance and accept the parents for their children with disabilities nervous

Saudi study on the reluctance and accept the parents for their children with disabilities nervous

Stomach tube .. the best ways to feed children with chronic neurological disabilities

Saudi study on the reluctance and accept the parents for their children with disabilities nervous

The children with severe cases of cerebral palsy and other developmental disabilities (formative) chronic neurological neurodevelopmental disabilities often have serious problems as a result of feeding and swallowing dysfunction, in addition to the inability to move. This often leads to suffocation due to recurring food seeped into the airway, bad ending chronic malnutrition, and the failure of physical growth.

* Modern methods of feeding and therefore the use of other scientific methods to feed this group of patients a safe and secure manner is the most appropriate and best solutions to their growth and to prevent serious medical complications. These methods include the use of the feeding tube «nose contagious» nasogastric tube, or resort to feeding by the introduction of slot stomach gastrostomy be a favorite for nutrition by «the authors of the nose» tube long-term substitute and a means successful narrow to ease frustration for patients and their families associated with feeding these patients. Offered «healthy» this topic on Prof. Mohammed Bin Mohammed Saeed Jan, a consultant and professor of pediatrics and neurology Pediatric Department, Faculty of Medicine, King Abdul Aziz University, explained that the introduction of this slot in the current time is done through the endoscope is used on a large scale.

He added that the latest medical studies prove and document the positive impact of feeding the stomach using the updated slot endoscopic via percutaneous endoscopic gastrostomy skin - (PEG) on the growth of children with neurological disabilities, and the quality of life and their families. It was also found that these children are subjected to repeated vomiting and chest infections has decreased and improved public their nutritional status.

* The reasons for the reluctance of the parents there is a problem frequently encountered by disabled children parents nervous when making approval of the subordination of their children to the work of the decision (PEG) and the development of gastric feeding tube, some of whom reject the idea at all and some of them finds difficulties in decision-making in a timely and delayed too much, leading to the emergence of health complications for the baby.

Specialists in health care in the Kingdom of Saudi Arabia and professors of pediatrics and nerves of children have studied the attitudes and impressions of parents of children with disabilities neurodevelopmental towards the work of the PEG and the development of gastric tube and were able to identify associated with these negative attitudes factors, also reached to identify the impressions after the pipe mode. This new study, conducted at the University founder supported by Scientific Research University, managed to scientific research which under the supervision of Prof. Dr. Mohammad Jan team and the participation of Dr. Abdullah Al-Saqqaf, Dr. Omar Excellency, Dr. Hussein al-Saqqaf of the study families of children with neurological disabilities, chronic concerning the process Impressions installation of the feeding tube through the telescope and its use in nutrition. The inclusion of thirty family reference manner through Endoscopy Unit audits at King Abdul Aziz University campus in Jeddah in the period between January 15 (January) to 15 July 2012. It was the preparation of a questionnaire included 25 questions to assess the impressions and experience of parents regarding the process installation and use of the feeding tube through the telescope.

The children ranged in age listed between 3-19 years (10.2 average) and was mostly (77%) suffer from severe cerebral palsy. Installation of tube feeding process has been through since the telescope 2 - 144 months (average 39) before the start of the study.

* Results from the results of this study that only 43% of parents (parents) said that they have enough information on the operation, said most of them (73%) said they had reservations and fears of the operation resulted in the delay in the conduct.

And after the procedure found most of them (67%) that the experience was better than expected it has been associated with a rate of previous knowledge about the process. Most parents have felt (80%) regret not to make this process early, which also has been linked by previous knowledge of the operation.

The research team concluded from this study that most of the parents of children not inform them and educate them well for the installation of the feeding tube through the telescope the process and that most of them considered that the experience was better than expected and thus regretted not perform this operation since early. The acceptance of this first research of its kind in the Kingdom poster scientific conference of the American Society for the nerves of the next child in Austin, Texas in America and published in the last month of the Saudi Medical Journal Saudi Med J 2013; Vol. 34 (7).